The Sad Story of Amare Stover, whose Face Was Disfigured Due to Giant Tumors

Amare Stover, who lives in Alabama, USA, lives with Type 1 Neurofibromatosis. This disease causes large tumors to form all over the young child’s body, especially on the face. We compiled Amare’s difficult life struggle for you from Dailymail.

Amare Stover has to live a life where he is despised and mocked by his peers and even adults.

Amare also has to struggle with learning difficulties, as the deformity and swelling on his face seriously affect his eyesight.

His mother, Kandice Stover, explains that her son faces various challenges every day because of this genetic disorder.

‘The size of the tumors affects him a lot, they make fun of him, whenever he goes out in public people make fun of him. They even called him a monster. Some children call it ‘ugly’ and won’t play with it. ‘I can’t understand people’s disrespect.’

‘I asked him ‘where did you get your mask?’ There were even adults who said: It’s really painful. I tell him that he is as normal as any other child, that people are rude and that he should not be upset. He is going through very difficult things, but he runs and plays, after all, he is a child.’

When Amare was born, there was a swelling in his left eye, so his family took him to the doctor. As a result of the tests, it was revealed that he had glaucoma and Type 1 fibromatosis.

The tumors were damaging the optic nerves, so he was immediately treated by a neurologist. In the following years, Amare almost lost his life by drowning when a tumor affected his trachea.

The family of the little boy, whose left eye is now completely closed, cannot get good news from the doctors.

Amare has been taking chemotherapy drugs for the last 5 years in the hope that the tumors in his body will shrink. But no progress could be made.

Since Amare is at risk of losing his vision completely, doctors advise his mother to learn the Braille alphabet.

What is Neurofibromatosis (NF1) or Von Recklinghausen disease?

It is a genetic disease that 50% of patients inherit from one of their parents, but it can also occur randomly due to a gene mutation before birth.

Swellings called neurofibromas occur as cells grow, and they are not malignant or infectious tumors. The progression of the disease may vary from person to person. People with NF1 may also show learning difficulties or behavioral disorders.

HELP: https://www.gofundme.com/f/1oj1rds26o